News of my Pride of Britain Award nomination is now public - I hope you're as excited as I am? I'd have loved to have revealed the news earlier but my latest stay in hospital hampered the filming somewhat. I've had loads of good luck messages today - thank you.
It's now a waiting game to see what happens next.
Friday, August 29, 2014
The tablets appear to be working to fix my breathing difficulties. There has been a noticeable difference in the past 24 hours which is a huge relief.
It's Blood Cancer Awareness Month in September and therefore I have been busy preparing some awareness and fund-raising initiatives.
Thursday, August 28, 2014
Today would have been my sister-in-law's birthday. She died in 2011 from breast and bone cancer aged 34 - the same age as I am now.
While ever there are cases such as this, the need for improved research and cutting-edge drugs continues and so does my determination to help raise the money to help fund this need.
Wednesday, August 27, 2014
It's time to celebrate. A few months ago, my bone marrow biopsy showed I had 0.004 per cent leukaemia in my body. My latest bone marrow test has come back as zero - zilch - nought.
For the first time in an unknown number of years, I am leukaemia free.
I now just need to sort this breathing problem. I have another CT scan and lung function tests on the horizon in the coming weeks.
Tuesday, August 26, 2014
My first full day back at home has had to be a day of rest as I'm still short of breath and my energy levels are low.
I've started my new regime of anti-fungal drugs and so far they are going okay - the list of side-effects is astonishing but they do say they are for 'life-threatening conditions'.
Monday, August 25, 2014
It may have been a wet and dismal bank holiday for most people, but it has been a joyful day for me as I was discharged from hospital. I'm returning again on Wednesday for another check-up and probably more tests but at least I'm home now. Armed with a bag full of new pills to go alongside my usual cocktail.
Sunday, August 24, 2014
I'm still quite breathless but my temperature and blood pressure have stabilised. After speaking to the doctors today, I am still confident that I will be home within the next day or two.
My treatment will then continue for months in tablet form rather than intravenously.
Saturday, August 23, 2014
I'm still undergoing treatment in hospital but things appear to be going ok. I had a slight temperature spike and some low blood pressure tests today but both have now stabilised.
It feels strange in that everybody knows me here - news of my campaigns and achievements must spread far and wide as all the staff knows snippets of news about me.
Friday, August 22, 2014
My treatment is in full swing now as I have a mixture of intravenous and tablet-form drugs as well as those painful stomach injections.
I'm being treated for both fungal and bacterial infections as I have a form of pneumonia.
Everyone is still hopeful that I will be home early next week if my results continue to improve.
Thursday, August 21, 2014
Finding a bed at the hospital took a little longer than usual but I'm now back in my usual ward.
For the next few days I will have a multitude of anti-fungal and antibiotic drips alongside a fairly continuous supply of tablets. I'm still hopeful of being home by Monday.
Wednesday, August 20, 2014
My bone marrow biopsy results are still not ready so I don't have any further news on that front.
The bad news however is that following my hospital appointment and an emergency CT scan today, I am ending the day with news that I will be re-admitted to hospital.
Fluid on both lungs looks like a fungal infection.
I'm upset at having to be re-admitted but at the same time I need to get better.
Tuesday, August 19, 2014
I'm slightly worried about the hospital tomorrow as I can never second guess the results.
However, at the same time I need to get my breathing problem checked before it escalates or causes further problems. I can't wait to be home again tomorrow with some good results under my belt.
Monday, August 18, 2014
My breathing is like a yo-yo. Today it has drastically improved to how it has been over the weekend. Whatever the underlying cause may be, it is something which comes and goes. Thankfully that rules out chest infections and other nasties but could point to conditions such as asthma.
Sunday, August 17, 2014
My breathing remains problematic - it's a good job I don't have to climb too many stairs on a daily basis. Apart from my breathing I feel well without too many other grumbles. I'll be happier once I've been checked over on Wednesday and once I have the results of my latest bone marrow biopsy.
Saturday, August 16, 2014
My breathing problem has resurrected itself this weekend. I am increasingly breathless and walking upstairs is the equivalent of climbing Everest. Thankfully I'm back at the hospital on Wednesday. No doubt this will be followed by numerous x-rays and tests.
Friday, August 15, 2014
Today it was confirmed that I can help Anthony Nolan monitor a new online forum it has created for bone marrow transplant patients. This voluntary role just requires me to log on to the forum when I can and help police the posts and stimulate new discussions. I’m hopeful it will be good for me and the users of the forum.
Thursday, August 14, 2014
I have to say a huge thanks to the kind readers who continue to send me their used stamps. Over the past couple of days, I have received a couple of bulk donations equating to a couple of kilos each - this is the same as sticking a bank note in a collection box, it really makes a difference.
To see earlier diary entries (dating back to April 2013) click on the 'older posts' link.